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Showing posts with the label data

Disrupting diagnosis: speech patterns, AI, and ethical issues of digital phenotyping

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By Ryan Purcell, PhD Jim Schwoebel, presenter at April The Future Now: (NEEDS) Diagnosing schizophrenia can be complex, time-consuming, and expensive. The April seminar on The Future Now: (NEEDs) Neuroscience and Emerging Ethical Dilemmas at Emory focused on one innovative effort to improve this process in the flourishing field of digital phenotyping. Presenter and NeuroLex founder and CEO Jim Schwoebel had witnessed his brother struggle for several years with frequent headaches and anxiety, and saw him accrue nearly $15,000 in medical expenses before his first psychotic break. From there it took many more years and additional psychotic episodes before Jim’s brother began responding to medication and his condition stabilized. Unfortunately, this experience is not uncommon; a recent study found that the median period from the onset of psychotic symptoms until treatment is 74 weeks. Naturally, Schwoebel thought deeply about how this had happened and what clues might have been seen ear...

Downloading Happiness

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By Sorab Arora Sorab Arora is currently a Master’s in Public Health student at Emory University , specializing in Healthcare Management and Policy. He has researched health technology design and strategy focused on behavioral medicine, most recently at Northwestern University’s Center for Behavioral Intervention Technologies . Arora is a graduate of both the University of Chicago (Summer Business Scholar – 2017) and Grinnell College (2016), where he has bridged social entrepreneurship with mobile technologies and medical innovation.  With median adult smartphone ownership rising to nearly 70% in advanced markets, individuals ranging from wealthy millennials to homeless youth have unprecedented access to mobile technologies (Poushter, 2016; Ben-Zeev et al., 2013). From “swiping” potential soulmates to ordering prescription glasses to one’s door, the proliferation of opportunities for immediate gratification through mobile applications only continues to grow. In what economists have ...

Big data and privacy on the Web: how should human research be conducted on the Internet?

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“They said, ‘You can’t mess with my emotions. It’s like messing with me. It’s mind control.'” That’s what Cornell communication and information science professor Jeffrey T. Hancock reported in a recent New York Times article about the public outcry over the now infamous Facebook emotional manipulation study (read on for details). Hancock was surprised and dismayed over the response. He sees the advent of massive-scale sociology and psychology research on the Internet as a “new era” and he has a point. The days of mostly relying on college students as research subjects may be coming to an end. But how should research be conducted in this new online setting? Is it even appropriate to use data from web sites as it is collected now with little, if any, user knowledge and informed consent existing only in the form of privacy policies that nobody reads? 1 In this post I argue that the Internet is not the Wild West and therefore internet-based research should not be allowed to side st...

“Lifelogging” and neurophysiological computing: Will we forget how to forget?

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One of the most famous examples of reminiscence includes a madeleine dipped in tea, which lead to almost 3,000 pages of recollection by the narrator in the beginning of Marcel Proust's novel In Search of Lost Time, and we have all experienced these sensory triggers to a particular memory. Remembering the past helps us to re-examine our lives, make choices, and share personal accomplishments. We often use external devices to help us remember events big and small, and with advances in technology, we often record and make plans using a variety of digital devices such as iPhones, Microsoft’s Outlook, and even smart watches. We have the capability to store a lifetime of data with these advanced technologies, and with the advent of Facebook, Twitter, “selfies”, and blogs it has become routine for many people to document their lives on a daily basis in a digital form, a practice that has been referred to as “lifelogging.” The outcome of documenting activities digitally are human digital m...

“Pass-thoughts” and non-deliberate physiological computing: When passwords and keyboards become obsolete

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Imagine opening your email on your computer not by typing a number code, a password, or even by scanning a finger, but instead by simply thinking of a password. Physical keys and garage door openers could also become artifacts of the past once they are replaced with what could be referred to as pass-thoughts . Just last year, researchers at UC Berkley used EEG signals emitted from subjects as biomarker identifiers to allow access to a computer. The entire system – the headset, the Bluetooth device, and the computer – had an error rate of less than 1%. 1 While wearing EEG headsets to open our devices may seem futuristic, this type of scenario could become more prevalent in the future due to advances in physiological computing (PC). Physiological computing is a unique form of human computer interactions because the input device for a computer is any form of real-time physiological data, such as a heart-rate or EEG signal. This is in stark contrast to the peripheral devices that we are...