Posts

Showing posts with the label health

Exploring the Risks of Digital Health Research: Towards a Pragmatic Framework

Image
By Dr. John Torous Image courtesy of Flickr user Integrated Change We often hear much about the potential of digital health to revolutionize medicine and transform care – but less about the risks and harms associated with the same technology-based monitoring and care. “It’s a smartphone app … how much harm can it really cause?” is a common thought today, but also the starting point for a deeper conversation. That conversation is increasingly happening at Institutional Review Boards (IRBs) as they are faced with an expanding number of research protocols feature digital- and smartphone-based technologies. In our article, ‘Assessment of Risk Associated with Digital and Smartphone Health Research: a New Challenge for IRBs” published in the Journal of Technology and Behavioral Science [1], we explore the evolving ethical challenges in evaluating digital health risk, and here expand on them. While risk and harm in our 21 st century digital era are themselves evolving topics that chang...

Neuroscience and Human Rights

Image
Last month, I had the privilege of attending the International Neuroethics Society Meeting in Washington, DC, made possible by a travel award from the Emory Neuroethics Program. This year's meeting featured panelists from diverse backgrounds: government, neuroscience, ethics, law, engineering, public health, and others. Each participant and attendee offered her unique perspectives on topical issues in neuroethics. As I listened to many thought-provoking presentations and discussions, a question kept arising in my mind: to what extent should scientists engage with issues of social justice if their research findings support changes in public policy? As a "war on science" continues to be waged by members of the U.S. Senate and Congress (see Senator Coburn's 2014 " Wastebook ," and the recent NPR Science Friday response by targeted scientists) and the American public lags in scientific literacy (A NSF report this year found that 1 in 4 Americans think the sun...