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Showing posts with the label disability

Neurodevelopmental Disability on TV: Neuroethics and Season 1 of ABC’s Speechless

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By John Aspler and Ariel Cascio John Aspler, a doctoral candidate in Neuroscience at McGill University and the Neuroethics Research Unit , focuses on the experiences of key stakeholders affected by fetal alcohol spectrum disorder, the way they are represented and discussed in Canadian media, and the potential stigmatization they face given related disability stereotypes.  Ariel Cascio, a postdoctoral researcher at the Neuroethics Research Unit of the Institut de recherches cliniques de Montréal, focuses primarily on autism spectrum conditions, identity, subjectivity, and biopolitics.  Introduction Television can be an important medium through which to explore cultural conceptions of complex topics like disability – a topic tackled by Speechless , a single-camera family sitcom. Speechless tells the story of JJ DiMeo, a young man with cerebral palsy (CP) portrayed by Micah Fowler, who himself has CP. The show focuses on JJ’s daily life as well as the experiences of his parent...

"American Horror Story" in Real Life: Understanding Racialized Views of Mental Illness and Stigma

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By Sunidhi Ramesh Racial and ethnic discrimination have taken various forms in the United States since its formation as a nation. The sign in the image reads: "Deport all Iranians. Get the hell out of my country." Image courtesy of Wikipedia . From 245 years of slavery to indirect racism in police sanctioning and force, minority belittlement has remained rampant in American society (1). There is no doubt that this history has left minorities in the United States with a differential understanding of what it means to be American and, more importantly, what it means to be an individual in a larger humankind. Generally, our day-to-day experiences shape the values, beliefs, and attitudes that allow us to navigate the real world (2). And so, with regards to minorities, consistent exposure to these subjective experiences (of belittlement and discrimination, for example) can begin to shape subjective perceptions that, in turn, can mold larger perspectives and viewpoints. Last spring,...

Would a Therapy for Down Syndrome Change Lives For Better or For Worse?

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By Sarika Sachdeva This post was written as part of a class assignment from students who took a neuroethics course with Dr. Rommelfanger in Paris of Summer 2016. Sarika Sachdeva is an undergraduate junior at Emory studying Neuroscience and Behavioral Biology and Economics. She is involved with research on stimulant abuse and addiction under Dr. Leonard Howell at Yerkes National Primate Research Center. Researchers around the world are working to develop treatments and cures for all kinds of genetic disorders and abnormalities, but what happens when the people affected by the condition don’t want it taken away? New breakthroughs in treatment are often controversial for non-fatal conditions such as Down Syndrome , which causes inhibited neural communication and leads to learning delays as a result of an extra copy of chromosome 21 ( Rochman, 2015 ). Recently, a study from the Boston University Medical Center claimed to have identified differences in gene expression that ar...

Autism and Well-Being

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By Richard Ashcroft, MA, PhD Professor Richard Ashcroft teaches medical law and ethics at both the undergraduate and postgraduate level in the Department of Law at Queen Mary, University of London. Previously, he was Professor of Biomedical Ethics in the School of Medicine and Dentistry, and before that he worked at Imperial College London, Bristol University and Liverpool University. Professor Ashcroft is Co-Director of the Centre for the Study of Incentives in Health, funded by the Wellcome Trust, with partners at Kings College London and the London School of Economics.  He is also working on the role of human rights theory, law and practice in bioethics policy, and on ethical challenges in public health. He has a longstanding interest in biomedical research ethics.  I am both someone who writes and teaches on bioethics, and father of a son with autism.  He’s a delightful and happy child and he and I have good lives. But like most parents of children with autism I do wo...