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Showing posts with the label disability rights

The plague at our doorstep: ethical issues presented by the Zika virus outbreak

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By Ryan Purcell Image courtesy of Flickr user Day Donaldson “Never before in history has there been a situation when a bite from a mosquito can result in such a devastating scenario.” So says Tom Frieden , director of the US Centers for Disease Control and Prevention ( CDC ). The Zika virus has captured headlines since late 2015 , when word spread north from Brazil that a virus, new to the Americas, may be silently causing alarming neurodevelopmental disorders in newborns. Now, the southern United States is preparing to confront the mosquito-borne illness, which “may become the first great plague of the 21st century.” As public health officials continue to work to mitigate the impact of what the World Health Organization has  declared  a “Global Health Emergency”, there are several important ethical issues that must be considered. These include a women’s reproductive rights, disability rights concerning those most affected, and the growing realization that poverty-stric...

Survival Needs and Growth Attenuation Therapy: Do They Signal a Need for a “Dependency Ethics”?

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By John Banja, PhD In 2006, the world learned about a child born with profound and life-long cognitive and physical disabilities who had undergone growth attenuation therapy (GAT) four years previously [1]. Called “Ashley” in media reports, she not only received the GAT—which consisted of administering high doses of estrogen over the span of a few years so as to staunch her physical growth—but she additionally had a hysterectomy, removal of her breast buds and an appendectomy. In response to international outrage that the child suffered these “mutilations” because she was disabled, her parents argued that these interventions would enable them to take better care of her, especially as she aged. Image courtesy of Pixabay GAT is back in the news with a New York Times magazine article [2] appearing March 22nd and an empirical study on parental perspectives recently published in the Cambridge Quarterly of Healthcare Ethics [3]. Children who receive GAT have an intellectual capacity th...